A social media conversation
#HowNotToDoPtEngagement and #HowToDoPtEngagement were Twitter hashtags started in 2018 by @couragesings, and was quickly adopted by more than 80 unique patient partners, caregivers and advocates from within and outside Canada.
Over the course of a few weeks, these individuals and organizations shared some, quite frankly, troubling ways that they had experienced "engagement" in clinical care and research. Through the sharing of these experiences, I learned more than I had yet to learn in reading the literature available at that time on "best practices", and figured others might benefit from this discourse, too.
Be Kind, Rewind
Patient Engagement Playlist on YouTube
Patient Engagement Articles & Posts
Through the #HowNotToDoPtEngagement and #HowToDoPtEngagement tweetstorms, a variety of resources were shared to help others start including patients in their research projects - patient blogs, academic journal articles, conference presentations, and other documents guiding meaningful engagement in health research.
View the group library and bookmark to stay up to date, or join and suggest resources that should be included.